Patient and Public Involvement

Patient and Public Involvement

Leads: Rachel Temple & George Clarke (McPin Foundation)

Patient and Public Involvement (PPI) is a key cross-programme work-package. The PPI elements of our project will be overseen by our independent Lived Experience Advisory Panel (LEAP). The LEAP is providing independent oversight across both projects within the Target Trials in Mental Health programme.

We have formed a group of 14 people with lived experience of anxiety, depression and different forms of talking or digital therapies provided within NHS Talking Therapies; for example, individual, group or internet delivered CBT for depression or anxiety, or EMDR or trauma-focussed CBT for PTSD. 

The group includes those aged 18+, from diverse backgrounds inclusive of marginalised groups (e.g. LGBTQ+, experience of deprivation, ethnicity, neurodiversity) for whom we have specifically reserved places and work with to identify individual needs. 

The group will be involved in the following ways:

• Help develop the study design and research questions

• Receive training, development opportunities, and support throughout their time on the project

• Interpret and make sense of study results, drawing on lived experience to contextualise the findings

• Develop ways to explain our study design and results to different audiences to ensure everyone can access them

• Opportunity to co-author on a paper to describe our lived-experience-centred approach to this work